Best of
Disability

2008

A Real Boy: How Autism Shattered Our Lives and Made a Family from the Pieces


Christopher Stevens - 2008
    He is unable to speak more than a few words, barely capable of expressing his most basic needs, oblivious to danger and blind to other people’s emotions. This is the heart-wrenching story of bringing up a child who will always be a little boy and an account of both the heartbreak and the unexpected joy of autism. With raw and sometimes brutal honesty, Christopher and Nicola Stevens lay bare their experiences, which are by turns harrowing, funny, and inspirational. As David’s story unfolds, his parents reveal how the condition has both tested their limits, and helped to forge an unbreakable bond of love.

All Dogs Have ADHD


Kathy Hoopmann - 2008
    This absorbing and enjoyable book takes a refreshing approach to understanding ADHD.

Henry and Jim


J.M. Snyder - 2008
    These two men who have spent a life in love, from the very first date arranged by Henry’s sister, through the rocky times they worked to make ends meet, and into their twilight years.NOTE: This story appears in the following anthologies — Best Gay Romance 2008 (Cleis Press) and Best Gay Stories 2009 (Lethe Press).

The Way I See It


Nicole Dryburgh - 2008
    Blind and mainly confined to a wheelchair, Nicole is wholehearted and positive, whether she is studying, fund-raising or hanging out with her friends. Nicole's diary of the last four years is the triumphant story of a refusal to give up hope.

Babies with Down Syndrome: A New Parents' Guide


Susan Skallerup - 2008
    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

Joint Hypermobility Handbook: A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome


Brad T. Tinkle - 2008
    Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.

Mrs. Gorski, I Think I Have The Wiggle Fidgets


Barbara Esham - 2008
    At the time, it just seems like a great idea. His teacher, Mrs. Gorski, has had aout enough; he can tell by the way her voice changes when she speaks to him. This time, he believes that he has come up with the best idea yet. The perfect plan to make everything better. Endorsements: “The Mainstream Connections Children's Book Series conveys a message that could have been lifted straight from a psychology research journal: there is more than one way to define ‘being smart’.  As these stories illustrate, for every person, large and small, there are skills that are relatively difficult to master and others that seem to come more naturally. These books emphasize the important empirical conclusion that just as regular exercise makes the body stronger, so, too, does practice and the effort to improve academically--with all the struggle, fatigue, and initial failure that it entails--allow people to capitalize on the malleable nature of human intelligence.” Dr. Samuel R. Sommers, Tufts University Professor of Psychology “Your books are delightful! I can’t wait until they are published so that I can share them with our twice-exceptional clients. I love the way you transform negative reactions of parents and teachers into affirming strategies that support everyone involved. I especially enjoyed the way David used his creative problem-solving skills to brainstorm all the ways he could handle his ‘Wiggle Fidgets’. Your books for children are definitely needed. I believe that they will make a real difference.” Linda Kreger Silverman, Ph.D. Director, Gifted Development Center, Co-Chair of the National Association for Gifted Children (NAGC) Task Force on Assessment; she serves on the American Psychological Association Task Force on Giftedness. “This is a wonderful book. Each story shows children that success is about effort and determination, that problems need not derail them, and that adults can understand their worries and struggles. My research demonstrates that these lessons are essential for children.” Dr. Carol S. Dweck, Stanford University Professor of Psychology “I applaud Barbara Esham for finding a way to teach young children how to be more mindful. In so doing, she sets the stage for their greater well-being as adults.” Dr. Ellen Langer, Harvard University Professor of Psychology “Katie’s dad can’t spell. Max can’t work under time pressure. Carolyn may never master cursive writing and David wiggles. They are typical of many students who struggle with some aspect of school. They are also lucky because each of them finds understanding or acceptance of their particular learning profiles. Whether it’s the realization that famous people have sometimes been “different” learners, a teacher who understands that creativity counts too, or the ability to identify coping strategies, the four students put a human face on what it means to struggle in school- and how essential it is to have partners in persisting for success. Katie, Max, Carolyn, and David are good news for students, parents, and teachers who want to understand what it means to learn outside the traditional lines of school.” Dr. Carol Tomlinson, University of Virginia Curry School of Education Program Coordinator for the Educational Psychology and Gifted Education Program.

Disability Theory


Tobin Anthony Siebers - 2008
    Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."---Michael Bérubé, Pennsylvania State University "Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."---Michael Davidson, University of California, San Diego"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."---Helen Deutsch, University of California, Los AngelesIntelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.

Jean Vanier: Essential Writings


Jean Vanier - 2008
    In time this grew into an international network of communities in which people with intellectual disabilities and those who assist them share their lives together. Though Vanier's roots are Roman Catholic, the movement is deeply ecumenical and interfaith, and his message of compassion, community, and the dignity of the human person, has struck a universal chord. Pope John Paul II called him "a great spokesman for the culture of solidarity and the civilization of love.'" This collection, published to mark Vanter's 80th birthday, contains his essential writings.

Living Gently in a Violent World: The Prophetic Witness of Weakness


Stanley Hauerwas - 2008
    The church has much to learn from an often overlooked community--those with disabilities. In this fascinating book, theologian Stanley Hauerwas collaborates with Jean Vanier, founder of the worldwide L'Arche communities. For many years, Hauerwas has reflected on the lives of people with disability, the political significance of community, and how the experience of disability addresses the weaknesses and failures of liberal society. And L'Arche provides a unique model of inclusive community that is underpinned by a deep spirituality and theology. Together, Vanier and Hauerwas carefully explore the contours of a countercultural community that embodies a different way of being and witnesses to a new order--one marked by radical forms of gentleness, peacemaking and faithfulness. The authors' explorations shed light on what it means to be human and how we are to live. The robust voice of Hauerwas and the gentle words of Vanier offer a synergy of ideas that, if listened to carefully, will lead the church to a fresh practicing of peace, love and friendship. This invigorating conversation is for everyday Christians who desire to live faithfully in a world that is violent and broken.

The Sensory Processing Disorder Answer Book: Practical Answers to the Top 250 Questions Parents Ask


Tara Delaney - 2008
    For many children, SPD can lead to academic struggles, behavioral problems, difficulties with coordination, and other issues. The Sensory Processing Disorder Answer Book is a reassuring, authoritative reference, providing sound advice and immediate answers to your most pressing questions about SPD, such as:What is sensory processing?Does SPD affect social skills?Can you see sensory processing difficulties in an infant?What is Sensory Integration Therapy?Is SPD a sign of autism?Are there tests for SPD?How do I get a prescription for occupational therapy?How do I teach my child to understand his sensory needs?Written in an easy-to-read question and answer format, The Sensory Processing Disorder Answer Book helps you fully understand SPD, conquer your fears, and seek help for your child when necessary.

Pathogenesis


Peggy Munson - 2008
    Gay & Lesbian Studies. "Put whippets in your heart and let the rabbits breed. They will." Like still-wet lagomorphs crawling over each other in innate proximity, Peggy Munson's poems confine the reader "inside a lantern, buzzing at the headlights." Munson addresses illness, family, and the blood running through both with malleable tenacity. Noelle Kocot describes Munson's work as "free from a lot of the burden of contemporary poetry conventions, existing] like a small island in the fiery sun, alone, yet willing to be utterly beautiful, utterly strange and utterly itself." PATHOGENESIS was a finalist or semifinalist for numerous prizes, including the Dorset Prize, the Carnegie-Mellon Poetry Series, the Beatrice Hawley Award, the Verse Prize, and the University of Wisconsin Pollack Prize. Munson is the author of the novel, ORIGAMI STRIPTEASE, a finalist for the Lambda Literary Awards.

Window Boy


Andrea White - 2008
    With great determination and the help of both his caretaker and his imaginary friend, Winston Churchill, Sam not only succeeds in gaining admittance to the school and the acceptance of his peers, but also fulfills his dream of becoming the school's basketball coach. The narrative, full of poignant insights into attitudes toward people with disabilities, provides a glimpse into the life of Winston Churchill, who is a key inspiration for young Sam.

Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics


Hans S. Reinders - 2008
    He acknowledges that, at first glance, this is not an unusual claim given the steps taken within the last few decades to bring the rights of those with disabilities into line with the rights of the mainstream. But, he argues, that cannot be the end of the matter, because the disabled are human beings before they are citizens. "To live a human life properly," he says, "they must not only be included in our institutions and have access to our public spaces; they must also be included in other people's lives, not just by natural necessity but by choice."Receiving the Gift of Friendship consists of three parts: (1) Profound Disability, (2) Theology, and (3) Ethics. Overturning the "commonsense" view of human beings, Reinders's argument for a paradigm shift in our relation to people with disabilities is founded on a groundbreaking philosophical-theological consideration of humanity and of our basic human commonality. Moreover, Reinders gives his study human vividness and warmth with stories of the profoundly disabled from his own life and from the work of Jean Vanier and Henri Nouwen in L'Arche communities.

Vulnerable Communion: A Theology of Disability and Hospitality


Thomas E. Reynolds - 2008
    Reynolds and his wife know what it's like to be misunderstood by a church community. In Vulnerable Communion, Reynolds draws upon that personal experience and a diverse body of literature to empower churches and individuals to foster deeper hospitality toward persons with disabilities.Reynolds argues that the Christian story is one of strength coming from weakness, of wholeness emerging from brokenness, and of power in vulnerability. He offers valuable biblical, theological, and pastoral tools to understand and welcome those with disabilities. Vulnerable Communion will be a useful resource for any student, theologian, church leader, or lay person seeking to discover the power of God revealed through weakness.

My Brother is Autistic


Jennifer Moore-Mallinos - 2008
    Each title speaks to a particular concern that children might encounter in the course of growing up. All books in this series have appealing color illustrations on every page, and are available in both English and Spanish language editions. A short section at the back of each book offers related advice to parents. My Brother is Autistic describes a condition that affects many families. Medical experts are just beginning to understand varying degrees of autism and its impact on both the autistic child and his family. This book describes an autistic child from his brother's point of view. It talks about ways autistic kids can be helped and how they can better relate to their family and surroundings.

Together


Tom Sullivan - 2008
    And Nelson can’t accept the fact that he’s been paired with someone other than his former master.Just as Brenden starts to live again, a devastating setback causes him to try to end it all. Brenden releases Nelson and sits down in the middle of an intersection. At that moment, everything changes when Nelson freely decides he’d rather join Brenden in death than live without him.Now they need a leap of faith—and a love beyond words—to make it. Together.

Reconstructing Motherhood and Disability in the Age of Perfect Babies


Gail Heidi Landsman - 2008
    Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.

Cripple Poetics


Petra Kuppers - 2008
    The dance of courtship is reflected in language that alternately snakes and darts, declares and obfuscates, reminisces and forges-finding freedom within its limitations. Cripple Poetics preserves and unfolds the artifacts of an original and timely love story that might otherwise have remained shrouded in a small, forgotten corner of cyberspace.

Being Well When We're Ill: Wholeness and Hope in Spite of Infirmity


Marva J. Dawn - 2008
    She knows from experience how to nurture hope in spite of infirmity. Filled with insight and practical help, each chapter of Being Well When We're Ill focuses on one particular kind of struggle, such as worry, guilt, the loss of meaning, or the loss of confidence and trust that God is present and personally loving. Each chapter details one or more appropriate ''finds'' - spiritual resources, emotional supports, intellectual answers, or practical solutions - that enable a person with infirmities to persevere through them and to be well in spite of them. For each issue she explores, such as loss of dreams, loneliness, physical pain, depression, ingratitude, side effects and more, Dawn includes discussions of biblical texts - not only texts that help lament losses but texts that bring wholeness. Readers will find themselves companioned in their sufferings and encouraged with new ways to surmount them.

The Wink of the Zenith: The Shaping of a Writer's Life


Floyd Skloot - 2008
    He was, as the San Francisco Chronicle noted, “shaping the experience of crippling illness into dazzling literature.” How such alchemy is performed—where, in fact, the magic comes from—is the subject of Skloot’s new book, a memoir of the making of a writer.  Sifting through memories and observations to discover how circumstance and nature conspired to make him the writer he is, Skloot enacts in this book the very process he describes, the shaping of a writer’s life. Among the influences of family and close friendship, experience and popular culture, he uncovers a unique and telling perspective on the forging of a writer’s individual sensibility. At the same time, his book explores fundamental questions about how life shapes the creative spirit—and how, in turn the writer makes sense of it all and gives life a new and meaningful shape in the form of literature.

Concerto for the Left Hand: Disability and the Defamiliar Body


Michael Davidson - 2008
    Rather than simply focusing on the ways in which disabled persons are portrayed, Michael Davidson explores how the experience of disability shapes the work of artists and why disability serves as a vital lens through which to interpret modern culture. Covering an eclectic range of topics---from the phantom missing limb in film noir to the poetry of American Sign Language---this collection delivers a unique and engaging assessment of the interplay between disability and aesthetics.Written in a fluid, accessible style, Concerto for the Left Hand will appeal to both specialists and general audiences. With its interdisciplinary approach, this book should appeal not only to scholars of disability studies but to all those working in minority art, deaf studies, visual culture, and modernism.Michael Davidson is Professor of American Literature at the University of California, San Diego. His other books include Guys Like Us: Citing Masculinity in Cold War Poetics and Ghostlier Demarcations: Modern Poetry and the Material World.

She Touched the World: Laura Bridgman, Deaf-Blind Pioneer


Sally Hobart Alexander - 2008
    At the time, no one believed a child with such severe disabilities could be taught to communicate, much less lead a full and productive life. But then a progressive doctor, who had just opened the country’s first school for the blind in Boston, took her in. Laura learned to communicate, read, and write—and eventually even to teach. By the age of 12, she was world famous.Audiences flocked to see her, and she was loved and admired by children everywhere. This fascinating and moving biography shows how Laura Bridgman paved the way for future generations of children with disabilities, making possible important advances in the way they would be educated. As a blind person with some hearing loss, Sally Hobart Alexander lends a unique and intimate perspective to this inspiring account. At last, the story of Laura Bridgman can find its long-deserved place alongside those of Louis Braille and Helen Keller.

Mexican Heat


Laura Baumbach - 2008
    One red-hot sexual encounter in a bar’s back room has put two years of deep undercover work in jeopardy—two years of danger and deception as he worked his way into crime boss Ricco Botelli’s inner circle. Gabriel can’t afford emotional entanglements. Hell, he can’t afford emotions. But that was before he had a name to pin on that anonymous one-off—Miguel Ortega.Miguel Ortega doesn’t trust anyone, but tough, street-smart Gabriel brings out the conquistador in his Spanish blood. But distractions are nothing short of deadly right now, not with his boss’s impending marriage to Botelli’s sister, which will ensure peace—and massive drug profits—for both families.On a trip to Mexico to set up drug supply lines, a violent confrontation proves they’ve got each other’s backs—to a degree.Then one savage act changes everything, testing not only their fragile bond, but Gabriel’s will to live.