Best of
Disability

2009

Just Don't Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain


Josh Sundquist - 2009
    One moment Josh Sundquist was your typical energetic and inquisitive nine year- old boy. The next, his entire life changed when he was diagnosed with Ewing's Sarcoma, a particularly virulent cancer strain that would eventually claim Josh's left leg. Told in a wide-eyed, winning, heartbreaking voice, Just Don't Fall is the story of the boy Josh was and of the young man he became. His story begins in a small, close-knit Southern town, where his father-an aspiring pastor questioning his faith, and his mother-- homeschooling an ever- growing brood of children-struggle to make ends meet. Josh journeys through a dizzying array of hospitals and eventually lands at a pivotal place: the nearby mountain, where he makes his first attempt to ski. It is on the slopes, and later, on the race course, that Josh's world bursts wide open in a way no one could have ever anticipated. The inspiration to ski, however, and to become a champion, is not all that Josh has to contend with- there is adolescence to navigate, the transition from homeschool to public high school, and girls. There is an increasingly turbulent and difficult home life, with another cancer scare, a wayward brother, and dwindling finances to pay for training. Finally, there is the wild, bumpy road to the Paralympics in Turin, with a misanthropic coach, training in the Rockies, and a timeless friendship with a charismatic, imposing Brooklyn homeboy named Ralph. Through it all, Josh is forced to question his abilities, his sanity, his will, his faith in himself, and his faith in God. Because of, not despite, these myriad obstacles in his path, Josh is able to achieve a genuine grace: the grace to risk failure and to succeed. It is the grace of a young boy becoming a man and of a champion realizing his greatest dream. Josh Sundquist shows us with charm, humility and remarkable strength that even if we fall, this inner grace can lift us up and carry us over the many mountains we all must face.

A Lifetime of Wisdom: Embracing the Way God Heals You


Joni Eareckson Tada - 2009
    It’s what I’ve found.I was only seventeen, just a girl, when God asked me for everything I had … my health, my hopes, my independence, my dreams, my freedom, and my mobility. He took it all. I was so angry with Him that I tried to push Him away. God relentlessly held me more closely.Looking back, forty years later, I understand that God has changed and healed me—my heart and my mind—in the most unexpected ways, giving me rubies of His wisdom about an unbending faith and an experience of His mercy I can now tell you about.Was it a fair exchange, my freedom and no wheelchair for the rubies of wisdom I’ve been given? Absolutely. In this I have learned at the feet of the Lord Jesus, embracing the way that God heals us, even when we rage at Him in anger, fear, and despair.This book is not about what I lost in that diving accident so long ago. It’s about the wisdom He’s given me to live life victoriously in the face of disappointments and challenges that we all face.

Falling Laughing: The Restoration of Edwyn Collins


Grace Maxwell - 2009
    He should have died. Doctors advised that if he did survive, there would be little of him left. If that wasn't enough, he went on to contract MRSA as a result of an operation to his skull and spent six months in hospital. Initially, Edwyn couldn't speak, read, write, walk, sit up, or feed himself. He had lost all movement in his right side and was suffering from aphasia—an inability to use or understand language. When he initially recovered consciousness the only words he could say were 'Grace,' 'Maxwell,' 'yes,' and 'no.' But with the help of his partner Grace and their 18-year-old son Will, Edwyn fought back. Slowly, and with monumental effort, he began to teach his brain to read and speak all over again—with some areas of his mind it was if he had been a slate wiped literally clean. Through a long and arduous road of therapy he began to re-inhabit his body until he could walk again. Grace's story is an intimate and inspiring account of what you do to survive when your husband is all but taken away without warning by a stroke.

Drawing Autism


Jill Mullin - 2009
    Add Drawing Autism to your wish list, tell your friends about it, and show it to your kids on the spectrum."-- Autism/Asperger's Digest "Mullin, a behavior analyst, brings together fascinating works by 40 artists on the spectrum with their answers to her questions about their process."-- The Boston Globe "Editor Jill Mullin has collected artwork from a host of painters and other graphic artists who are all somewhere on the spectrum. The fascinating and often lovely reprints in Drawing Autism help provide another perspective on the capabilities of people with autism."-- Time Out New York "Mullin's clinical background in Applied Behavior Analysis, combined with more than a decade helping individuals with ASD, serve her well as the book’s curator."-- The Portland Phoenix "[Editor Jill Mullin] has put together a beautiful and stimulating exhibition-in-a-book."--Story Circle Book Reviews"Drawing Autism is absolutely wonderful in its entirety."--Brain Pickings"Jill Mullin embraces the full range and spectrum of autism and artistic expression...Rich and varied images."--BookTrib"This book is like a key to opening doors across educational and medical landscapes. But perhaps even more importantly, the fact that many of the artists are able to explain what they were feeling at the time of their drawings will surely help this book find solid footing among parents, caregivers, and extended family members who have, up to this point, struggled to understand the inner workings of their precious loved one’s autistic mind."--New York Journal of Books"A book of astonishing beauty."-- BOOKS (France)"What is the actual experience of living with autism in a deep-felt sense, beyond the social stereotypes and headline-worthy superskills? Drawing Autism, a celebration of the artistry and self-expression found in artwork by people diagnosed with autism, explores just that. The stunning volume features works by more fifty international contributors, from children to established artists, that illustrate the rich multiplicity of the condition."-- The Atlantic Over the last decade autism spectrum disorder (ASD) has become an international topic of conversation, knowing no racial, ethnic, or social barriers. Behavior analyst and educator Jill Mullin has assembled a staggering array of work from established artists like Gregory Blackstock and Jessica Park to the unknown but no less talented. Their creations, coupled with artist interviews, comprise a fascinating and compelling book that serves to educate and inspire anyone who knows someone diagnosed with ASD. Mullin's introduction and the foreword by best-selling author Temple Grandin provide an overview of autism and advocate for nurturing the talents, artistic and otherwise, of autistic individuals.

Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues


Lindsey Biel - 2009
    Sensory integration dysfunction, also known as sensory processing disorder, affects all kinds of children-from those with developmental delays, attention problems, or autism spectrum disorders, to those without any other issues. Coauthored by a pediatric occupational therapist and a parent of a child with sensory issues, this updated and expanded edition of Raising a Sensory Smart Child is comprehensive and more helpful than ever. Learn: *How the senses actually work and integrate with each other *How and where to get the very best professional help *"Sensory diet" activities that meet your child's needs--including new tips and ideas for kids, teens, adults, and families *Practical solutions for daily challenges-from brushing teeth to getting dressed to picky eating to family gatherings *Using "sensory smarts" to help children with developmental delays, learning, and attention problems *The special challenges of helping children with autism and sensory issues * Ways to advocate for your child at school and make schools "sensory smart" *How to empower your child and teen in the world *Complementary therapies, resources, and helpful web sites In all, the most comprehensive guide to sensory processing challenges is now more detailed and useful than ever. Loved and celebrated by parents, teachers, therapists, doctors and others, the new edition of Raising a Sensory Smart Child is a must-have volume for anyone who cares about a child with sensory issues. ***WINNER of the NAPPA GOLD AWARD and iPARENTING MEDIA AWARD***

My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities


Yantra Bertelli - 2009
    Featuring works by so-called alternative parents who have attempted to move away from mainstream thought, this anthology carefully considers the implications of raising children with disabilities. From professional writers to novice storytellers, including original essays by Robert Rummel-Hudson, Ayun Halliday, and Kerry Cohen, this assortment of authentic, shared experiences from parents in the know is a partial antidote to the stories that misrepresent, ridicule, and objectify disabled children and their parents.

My Sister, Alicia May


Nancy Tupper Ling - 2009
    In many ways, Rachel and Alicia are like any sisters, but Rachel knows her sister is very different and very special because she has Down syndrome. Though Rachel occasionally feels frustrations and resentment about having to help watch over her special sister, she most often feels love, acceptance, and pride for her. Exquisitely written with humor and compassion, this story focuses on the sisters' relationship and their respective places in the family.

Silent Sorority: A Barren Woman Gets Busy, Angry, Lost and Found


Pamela Mahoney Tsigdinos - 2009
    But where are the voices of those who are unable to have children? In relating what happens when nature and science find their limits, Silent Sorority examines a seldom acknowledged outcome and raises provocative, often uncomfortable questions usually reserved for late night reflection or anonymous blogging. Outside of the physical reckoning there lies the challenge of moving forward in a society that doesn't know how to handle the awkwardness of infertility. With no Emily Post-like guidelines for supporting couples who can't conceive, most well-intentioned "fertile" people miss the mark. Silent Sorority offers an unflinching and insightful look at what it's like to be barren in an era of designer babies and helicopter parents. Silent Sorority received the 2010 Team RESOLVE Choice Award for Best Book.

Design Meets Disability


Graham Pullin - 2009
    This revolution has come about through embracing the design culture of the fashion industry. Why shouldn't design sensibilities also be applied to hearing aids, prosthetic limbs, and communication aids? In return, disability can provoke radical new directions in mainstream design. Charles and Ray Eames's iconic furniture was inspired by a molded plywood leg splint that they designed for injured and disabled servicemen. Designers today could be similarly inspired by disability. In Design Meets Disability, Graham Pullin shows us how design and disability can inspire each other. In the Eameses' work there was a healthy tension between cut-to-the-chase problem solving and more playful explorations. Pullin offers examples of how design can meet disability today. Why, he asks, shouldn't hearing aids be as fashionable as eyewear? What new forms of braille signage might proliferate if designers kept both sighted and visually impaired people in mind? Can simple designs avoid the need for complicated accessibility features? Can such emerging design methods as "experience prototyping" and "critical design" complement clinical trials? Pullin also presents a series of interviews with leading designers about specific disability design projects, including stepstools for people with restricted growth, prosthetic legs (and whether they can be both honest and beautifully designed), and text-to-speech technology with tone of voice. When design meets disability, the diversity of complementary, even contradictory, approaches can enrich each field.

Healing Companions: Ordinary Dogs and Their Extraordinary Power to Transform Lives


Jane Miller - 2009
    They are wonderful teachers, therapists and role models for us all. Read Healing Companions and learn about their ability to guide and heal us all."--Bernie Siegel, MD, author of Smudge Bunny As the more than 65 million dog owners in America will attest, there's something about the presence of a dog that inspires confidence, nurtures emotional well-being, and brings out the best in ourselves. But for some people, the presence of a dog can do even more. Written by the leading expert in an emerging new field of therapy, Healing Companions is the first book to detail how dogs are increasingly benefiting those who suffer from a range of emotional ills, from eating disorders and anxiety to agoraphobia, depression, and post-traumatic stress. Healing Companions will teach you: * What criteria to consider when choosing the right dog for you. * What kind of training service dogs require. * What to expect and how to respond when you take a service dog out in public. * How a dog can compliment other forms of therapy. * How to navigate the procedural regulations that apply to a service dog. * How to recognize the dog's needs and provide it with proper care. * And much more.

Visible: A Femmethology, Volume One


Jennifer Clare Burke - 2009
    Award-winning authors, spoken-word artists, and new voices come together to challenge conventional ideas of how disability, class, nationality, race, aesthetics, sexual orientation, gender identity and body type intersect with each contributor's concrete notion of femmedom.

Iron Heart: The True Story of How I Came Back from the Dead


Brian Boyle - 2009
    On the way home from swim practice, eighteen-year old Brian Boyle’s future changed in an instant when a dump truck plowed into his Camaro. He was airlifted to a shock-trauma hospital. He had lost sixty percent of his blood, his heart had moved across his chest, and his organs and pelvis were pulverized. He was placed in a medically-induced coma. When Brian finally emerged from the coma two months later, he had no memory of the accident. He could see and hear, but not move or talk. Unable to communicate to his doctors, nurses, or frantic parents, he heard words like “vegetable” and “nursing home.” If he lived, doctors predicted he might not be able to walk again, and certainly not swim. Then, miraculously, Brian clawed his way back to the living. First blinking his eyelids, then squeezing a hand, then smiling, he gradually emerged from his locked-in state. The former swimmer and bodybuilder had lost one hundred pounds. Iron Heart is the first-person account of his ordeal and his miraculous comeback. With enormous fortitude he learned to walk, then run, and eventually, to swim. With his dream of competing in the Ironman Triathlon spurring him on, Brian defied all odds, and three-and-a-half years after his accident, crossed the finish line in Kona, Hawaii. Brian’s inspiring journey from coma to Kona is brought to life in this memoir.

Looking Through the Eyes of Trauma and Dissociation: An Illustrated Guide for Emdr Therapists and Clients


Sandra Paulsen - 2009
    Recent advances in the fields of trauma and dissociation have revolutionized treatment. In this book, Dr Paulsen uses over 100 of her original cartoons and an approachable format to telegraph key concepts. The book assists therapists and clients to collaborate about client symptoms and therapy. As an EMDR (Eye Movement Desensitization and Reprocessing) practitioner since 1991, and an instructor of popular workshops about ego state therapy and dissociation for 15 years, Dr Paulsen offers proven metaphors, discussion and case examples. The highly visual format accommodates two audiences. Readers who want a light approach can focus on cartoons and cases. Those who want technical details and references will find them too. In a non-triggering style, the book describes a safe approach to stabilizing emotions and, later, a procedure that may include EMDR to detoxify traumatic memories.

101 Games and Activities for Children with Autism, Asperger's and Sensory Processing Disorders


Tara Delaney - 2009
    Children improve their motor skills, language skills, and social skills by moving their bodies and interacting with their environment. Yet the biggest challenges parents, teachers, and loved ones face with children on the autism spectrum or with sensory processing disorders is how to successfully engage them in play.Pediatric occupational therapist Tara Delaney provides the answer. In 101 Games and Activities for Children with Autism, Asperger's, and Sensory Processing Disorders, she shows you how to teach your children by moving their bodies through play. These interactive games are quick to learn but will provide hours of fun and learning for your child. And many of the games can be played indoors or outdoors, so your child can enjoy them at home, outside, or on field trips.More than one hundred games that help your child:make eye-contact, stay focused, and strengthen his or her motor skillsassociate words with objects and improve language and numerical skillslearn how to interact with others, how to take turns, and other social skills needed for attending preschool and school

Wherever There's a Fight: How Runaway Slaves, Suffragists, Immigrants, Strikers, and Poets Shaped Civil Liberties in California


Elaine Elinson - 2009
    The first thorough history of civil liberties struggles in California from the cases of early Chinese immigrants, professionals who challenged McCarthyism, people of color, people with disabilities, and to todays' same-sex marriage, and religious discrimination.Stories of people who fought for their constitutional rights.

Staring: How We Look


Rosemarie Garland-Thomson - 2009
    In the first book of its kind, Garland-Thomson defines staring, explores the factors that motivate it, and considers the targets and the effects of the stare. While borrowing from psychology and biology to help explain why the impulse to stare is so powerful, she also enlarges and complicates these formulations with examples from the realm of imaginative culture. Featuring over forty illustrations, Staring captures the stimulating combination of symbolic, material and emotional factors that make staring so irresistible while endeavoring to shift the usual response to staring, shame, into an engaged self-consideration. Elegant and provocative, this unique study advances new ways of thinking about visuality and the body that will appeal to readers who are interested in the overlap between the humanities and human behaviors.

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-Teen and Teenage Years


Shana Nichols - 2009
    This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in".1000Guide on what to expect and how to help girls on the spectrum as they grow up0600The authors unflinchingly address the most challenging issues of girls and puberty with grace and matter-of-fact discussions of pelvic exams, periods, eating disorders, healthy sexuality, and self-perception. The discussions range from choosing undergarments to the difference in boys' and girls' aggression in adolescence. Full of hints from other parents, research results, and suggestions from professionals, this book is an essential guide to adolescence for parents of girls on the spectrum (and it's also great for parents of boys!).the Spectrum, The Newsletter of The Autism Society of North Carolina, US0600This book provides a valuable insight into the concerns commonly faced by girls with Autism Spectrum Disorders (ASDs), and their parents. It offers advice and coping strategies on a host of areas, including approaching adolescence, navigating puberty, self-perception and self-confidence, understanding friendships, looking at healthy sexuality, promoting personal safety and many more...The book has a warm and engaging reading style, and the may case studies of experiences from families, daughters and educators provide brave testimonies and excellent recommendations for support; a useful reference list is also provided. This book is a must have read for those interested in helping females on the autistic spectrum.Youth in Mind0600It gives me great pleasure to introduce ASQ readers to this terrific book!...Girls Growing Up on the Autism Spectrum is an A+ read!Liane Holliday Willey, EdD, Autism Spectrum Quarterly0600This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome0600The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents.E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd0600Shana Nichols, Gina Marie Moravcik, and Samara Pulver Tetenbaum provide solid, specific advice on teen issues - social life, changing bodies, friendships, diet and nutrition, self-reliance, anxiety, and more. This is an excellent beginning, with resources listed (books, articles, Web sites, blogs) in every chapter and short case studies that break up the text throughout. The authors tackle the bigger issues of socialization and friendships, plus the nitty-gritty of raising an adolescent girl - periods, ob-gyn exams, weight, privacy, and hygiene.ForeWord0600There's really only one way to say this: If you have a daughter anywhere on the autism spectrum, or even with unexplainable quirky behaviour, this book is a must. While there are hundreds of good books about autism, girls have their own unique issues when it comes to this puzzling disorder. Dr. Nichols' book is a standout. Addressing girls on their own, and in such an insightful, scholarly and reader-friendly way, what 'Girls...' has done is invaluable. You'll be shocked at how easy it is to have a girl on the spectrum misdiagnosed or not therapeutically treated correctly, but you're not left on your own. Nichols provides great counsel. 'Girls...' offers not only important information about the child, but it also provides necessary strategies for parents (and medical professionals) to help improve the child's life, and not a single subject goes untouched. The teen years are tough enough for any girl, but for one who has spectrum challenges, it can be devastating. Nichols, the clinical director of the Fay J. Lindner Center for Autism and Developmental Disorders, provides expert advice that is practical and necessary, on topics ranging from cognitive concerns and everyday behaviours to sexuality and just fitting in, which for a teenaged girl can be the most important issue of all--on the spectrum or not. Nichols draws from many wells here - vast research, conversations and interviews with parents, teachers and medical experts, and most importantly, these young girls. This is one of those hallelujah books for which parents search high and low.Long Island Press0600Rather than constructing a "how-to" book, in which pre-planned lessons have been created focusing on puberty or sexuality issues, the authors provide a broad conceptual treatment of the relevant sociological and cultural issues. That is, not only do they address the social, communication, and behavioural vulnerabilities that these girls may display, but they place these vulnerabilities in the context of a girl's social world. From this vantage point, the authors describe concrete steps and processes which may be useful for working with girls on the spectrum to help them cope with the issues they confront as they mature...This volume continually reminds the reader to think about the challenges typically developing girls and young women face throughout the pre-teen and teenage years as the context for their understanding of a girl with an ASD.Journal of Autism and Developmental Disorders0200This book covers the concerns faced by girls with ASDs and their parents, from periods and puberty to friendships and "fitting in". Looking at these issues within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help the whole family through the teenage years.0400Foreword. Acknowledgements. Author’s Notes. 1. What Do We Currently Know About Girls and Women with Autism Spectrum Disorders? 2. Approaching Adolescence: Anticipation, Anxiety, Adaptation and Acceptance? 3. Puberty or ‘Do My Parents Know You’re Here?’ 4. The Red Spot: Periods, Pads and Pelvic Exams. 5. Feeling Good Inside and Out: Self-perception and Self-confidence. 6. The Social Landscape of Adolescence: Friendships and Social Status. 7. Healthy Sexuality for Girls with ASDs. 8. Keeping Girls Safe: Promoting Personal Safety in the Real World. 9. Our Journey: A Mother and her Daughter with Asperger's Syndrome. Conclusion: Embracing Change. References. Index.01000301http://www.biblioimages.com/jkp/getim...

the woman you write poems about


danielle (dani) montgomery - 2009
    Sheas right. Tales of fugitive relatives, destitute swindlers and dangerous families populate her work. Writing bad checks and using denuded credit cards, Montgomery shows us what happens when the second paycheck in apaycheck-to-paychecka goes missing. She shows us the effects when basic needs are denied. And her poems insist on reminding us that this too, is America, not American literature and that the line drawn between ausa and athema is a fiction, a lie we tell ourselves to keep ourselves safe. But none of us, as Montgomeryas work shows us, can ever be truly safe as long as we are human.a aDaphne Gottlieb, from the introduction

Attention, Girls!: A Guide to Learn All about Your AD/HD


Patricia O. Quinn - 2009
    It includes useful lessons that are simple to apply.

Cross Country Chaos


Lesli Richardson - 2009
    Kelly finds out about the Junior National Disability Games, but they're in Spokane, Washington, a continent away from her Florida home. She's clueless about what to do next. Mart Rawlings is a single, handsome wheelchair athlete who volunteers to coach Denny and helps him qualify--and falls hard for Kelly. But past heartache over her cheating ex fuels Kelly's reluctance to get personally involved with him. Kelly must survive a grueling cross country drive to Nationals with her sons and mother, but more importantly, can she make herself take a chance on love? Cross Country Chaos is a funny, passionate, and at times cringingly honest story of healing broken hearts, rebuilding trust, finding love in unexpected places, and realizing sometimes the greatest disability is between a person's ears, not their body. A BookStrand Mainstream Romance

Sick: A Compilation Zine on Physical Illness


Ben Holtzman - 2009
    The zine is meant to be a resource for those who are living with illness as well as those who have not directly experienced it themselves. Contributors discuss personal experiences as well as topics such as receiving support, providing support, and being an informed patient. These writings are meant to increase understandings of illness and further discussion as well as action towards building communities of care.

Signifying Bodies: Disability in Contemporary Life Writing


G. Thomas Couser - 2009
    Couser's work engages these debates by exploring the extensive number of personal narratives by or about persons with disabilities. As Couser brilliantly demonstrates through synoptic readings, these works challenge the 'preferred rhetorics' by which such narratives are usually written (triumphalist, gothic, nostalgic) while making visible the variegated nature of embodied life."---Michael Davidson, University of California, San Diego"Signifying Bodies shows us that life writing about disability is . . . everywhere. . . . From obituary to documentary film to ethnography to literary memoir to the law, the book casts a wide net, detailing how various written and filmed responses to disability both enact and resist conventional narrative patterns. [This] not only broadens our idea about where to look for life writing, but also demonstrates how thoroughly stereotypes about disability mediate our social and artistic languages---even when an author has (so-called) the best intentions."---Susannah B. Mintz, Skidmore CollegeMemoirs have enjoyed great popularity in recent years, experiencing significant sales, prominent reviews, and diverse readerships. Signifying Bodies shows that at the heart of the memoir phenomenon is our fascination with writing that focuses on what it means to live in, or be, an anomalous body---in other words, what it means to be disabled. Previous literary accounts of the disabled body have often portrayed it as a stable entity possibly signifying moral deviance or divine disfavor, but contemporary writers with disabilities are defining themselves and depicting their bodies in new ways. Using the insights of disability studies and source material ranging from the Old and New Testaments to the works of authors like Lucy Grealy and Simi Linton and including contemporary films such as Million Dollar Baby, G. Thomas Couser sheds light on a broader cultural phenomenon, exploring topics such as the ethical issues involved in disability memoirs, the rhetorical patterns they frequently employ, and the complex relationship between disability narrative and disability law.G. Thomas Couser is Professor of English at Hofstra University.